This Makes Diabetes Seem Easy

Dear Reader,

My nine-year-old who has type 1 diabetes is participating in a research study. She will wear a continuous glucose monitor (CGMS) for three days at a  time every 3 months for the next 18 months. She had her first bout with it about a week or so ago. The monitor itself was no problem. She wore it for the 3 days with little complaining. It is the “blind” kind so we cannot see the results while she is wearing it, but they are supposed to send us copies (still waiting on that).

The hard part is that for the 3 days she and I both are supposed to write down everything we eat in detail. That means listing every ingredient and giving some sort of measurement of how much we ate of each–how many ounces, grams, cups etc. This is harder than it sounds! We do tend to eat a lot of homemade things and honestly, this study, while it is aimed at improving nutrition in kids with type 1, discourages that. Those who run the study can look up nutrition info if I say “1 McDonald’s hamburger.” But if I say “one cup of homemade pasta sauce”, it is harder. I did give them recipes for some things I made. But some things, like my pasta sauce, I made weeks ago and froze. I have no idea what in it. And with that and other things it is hard to say what fraction of the recipe we ate.

Honestly, I haven’t been this overwhelmed since we began diabetes and had to first learn to count carbs and dose insulin based on it. The pump start was a little bit of  a transition too (as was quitting the pump and going back to injections), but I think this is tougher than either of those. Fortunately, it is only for  a limited amount of time.


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